Disclosure

 

††††††††† People with epilepsy often wonder why they can be treated badly or unfairly just because they have Epilepsy. This can be a problem for people with Epilepsy, but one that can change. Understanding and education can change the universal outlook about epilepsy.

 

††††††††††† Most people donít understand epilepsy. People are afraid of things they donít understand. People donít like things they are afraid of and try to avoid things they donít like. However, learning how to explain your condition will help people understand, create a greater awareness, aid in dispelling existing myths about epilepsy and open the doorways to education about epilepsy.

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††††††††††† People with Epilepsy can talk about seizures. Some of the following ideas may help in the disclosure process and best explain the particular type of seizure/seizures.

Write down several things:

  1. What is a seizure (simply, it is an electrical discharge in the brain, usually self limited, that causes different physical effects for different people and seizure types, a loss of consciousness usually, and other effects)?Explain what happens in the brain, what causes it, and what happens to the body before, during, and after.

 

  1. What does a seizure look like?

 

Identify the way your seizure displays itself. -A person usually doesnít know what is happening during a seizure, has no control over what happens, and that you canít stop a seizure.

 

  1. How can someone help a person having a seizure?

 

Explain what to do during a seizure, how to tell when it is over, and how to help after a seizure. Also, mention whether a person knows they are going to have a seizure, and how to react when they tell someone.

 

  1. How does epilepsy affect a person when they arenít having a seizure?

Explain how people with epilepsy are very normal most of the time, including the degree of post seizure impairment, physical or cognitive challenges, and side effects of medication.

 

  1. Finally, how is someone not affected by seizures? Think about some of the ďstigmasĒ that people with epilepsy are faced with, and find a way to present yourself well, not as an epileptic (epilepsy being most important), but as a complete person, with epilepsy being one of many parts of your life.

 

††††††††††† Seizures can be frightening events for anyone, with better education, support, will assist in disclosure/seizures becoming an overwhelming burden for those who experience infrequent seizures and are moderately to well controlled. Explaining seizures to people, being welcome to questions, and helping people understand seizures can help to make life much easier, andsupport ways to lead a very normal life. If people understand epilepsy, they will not be as shocked or afraid, education is the key to understanding and successful disclosure!

 

If you would like you support or information and educational materials, or an in-service at your place of work, please contact the Adult Programs Coordinator. We have a wealth of information and educational videos that can be used in your life and or workplace. We are here to support you in the Fraser Valley