Self-education is a critical component in advocating for yourself, or others with epilepsy. Some of the elements of being an effective advocate include:

• Understanding and using the correct terminology.

• Being aware of treatment options.

• Recognizing basic types of seizures.

• Identifying and knowing what a dangerous seizure looks like (Status Epilepticus).

• Knowing how to intervene appropriately in a status seizure (e.g. Rectal Valium - training by nursing support).

• Being alert to the dangers and unacceptable side effects of medication.

• Understanding the impact that medications and seizures can have on cognition and behaviour.

• Keeping seizure management plans updated through Nursing Support.

• Ensuring that you and someone from Nursing Support (or your school health nurse) attends Individual Education Plan (IEP) meetings.

• Being aware of the multifaceted issues faced by children and families living with epilepsy.

• Using supports that exist for individuals with epilepsy and their families (for detailed information contact the Fraser Valley Epilepsy Society).

The basis for advocacy in public schools is funded in the Fair Schools Report

1.    All children and youth have the right to be valued and to be treated with respect and dignity.

2.    All children and youth have the right to a fair and equitable education.

3.    All children and youth have the right to receive appropriate advocacy supports.

4.    All children and youth have the right to participate in decisions that affect them, to express their views and to have them carefully considered.

5.    All children and youth have the right to benefit from the fundamental human rights established in the United Nations Convention on the Rights of the Child.

6.    All children and youth have the right to a safe physical and emotional environment.

7.    All children and youth have the right to receive appropriate programs from trained and properly motivated staff.

8.    All children and youth have the right to access publicly funded services in their home communities, or as close to their home as possible.

Student, staff and volunteers have the right to a safe and welcoming learning and working environment. Acts of bullying, intimidation, discrimination or harassment must not be tolerated. For more information: see the Safe School Centre.