| 1. In many movies, books and television shows, persons with epilepsy are portrayed as being “crazy” or evil.” | 1 2 3 4 5 |
| 2. After a seizure, provincial regulatory bodies many revoke the driver’s license of a person with epilepsy. | 1 2 3 4 5 |
| 3. Some people with epilepsy can’t afford their medication. | 1 2 3 4 5 |
| 4. The medical community is not always properly trained about how to inform and educate people about epilepsy. | 1 2 3 4 5 |
| 5. People with epilepsy are more likely to be under- or unemployed. | 1 2 3 4 5 |
| 6. Police, teachers, and other public servants are often not properly trained to deal with person with epilepsy. | 1 2 3 4 5 |
| 7. “Children and adults with epilepsy often experience barriers to and a lack of support for education.” | 1 2 3 4 5 |
| 8. The use of strobe lights in television and video games can cause seizures in some people. | 1 2 3 4 5 |
| 9. Some people with epilepsy may find it more difficult to get life insurance and health benefits. | 1 2 3 4 5 |
| 10. Generic Anti-Seizure Medication is automatically substituted by the pharmacist with no requirements to inform the patient – are you concerned by this lack of disclosure? | 1 2 3 4 5 |
| 11. At a Canada-wide level, whom would you like to speak on your behalf as a person living with or affected by epilepsy? | a) Canadian Epilepsy Alliance b) The Canadian Epilepsy Alliance member in your area c) Another Association (please name below) |
| If you answered "c) Another Association" to Question 11, please tell us who you mean. | |
| Please indicate your top three choices from the above list and briefly tell us why the statement concerns you. EXAMPLE: The #1 Most important issue to me is Question 5. This is because it directly effects me. | |
| Are there other issues affecting people with epilepsy that are not listed here, but where are of concern to you? If so, please describe them briefly. | |
| Please indicate your association with epilepsy. (Please check all that apply) | Person with epilepsy Spouse of person with epilepsy Parents of child with epilepsy Physician Other (please name below) |
| If you answered "Other" to the above question, please tell us what you mean. | |
| Indicate your age. (Please check one of the following) | 20 years old or less 21-40 years 41-60 years 61 years old or more |
| The Canadian Epilepsy Alliance welcomes your comments and suggestions regarding this survey, our resources, or the organization itself. Please feel free to use this space to express your thoughts. | |
| If you would like to receive the results of the survey, please give us your contact information. | |